Fund Groundbreaking Sickle Cell Research Sickle cell disease affects millions globally, yet funding for research lags far behind other genetic disorders. Despite promising advances in gene therapy, many patients still face limited treatment options. By…
The extinction of plant and animal species is endangering the functioning of ecosystems. We must take actions now to stop further erosion of biodiversity.
Bone marrow transplants offer hope for sickle cell patients, but finding a match is especially difficult for individuals of African descent. A lack of diversity in donor registries leaves many without this life-saving option. Sign…
Isolation often compounds the challenges of living with sickle cell disease. Community support networks offer patients and families a space to connect, share resources, and find strength together. Sign our petition urging local governments and…
Sickle cell disease is a global health crisis, particularly in low-resource regions. By fostering international collaboration, we can share knowledge, improve access to care, and develop innovative solutions. Join our call for global action to…
Every baby deserves a healthy start, yet many are born with undiagnosed sickle cell disease due to inadequate screening programs. Universal newborn screening ensures early diagnosis and treatment, reducing complications and saving lives. However, several…
The Issue. Sickle cell disease is a life-threatening genetic condition that impacts thousands of Ghanaians. Medications like hydroxyurea can drastically improve the quality of life for those affected, yet high costs and limited availability make…
Patients with sickle cell disease frequently face systemic discrimination in healthcare settings, from longer emergency room wait times to inadequate pain management. These disparities exacerbate suffering and diminish quality of life for countless individuals. Sign…
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We are committed to doing what is necessary, regardless of what is considered economically feasible. Our goal is to protect the planet, and uphold human rights.
Increase Access to Affordable Sickle Cell Medications We are calling on policymakers and pharmaceutical companies to address this disparity by reducing the cost of these life-saving treatments. Accessible pricing, expanded insurance coverage, and patient assistance…
Raising awareness is key to combating stigma and promoting better understanding of sickle cell disease. Officially recognizing National Sickle Cell Awareness Days would bring much-needed attention to the struggles and resilience of patients and their…