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What We Do

HomeWhat We Do

Our Mission

We are committed to raising awareness, challenging misconceptions, and advocating for better healthcare and support systems for Sickle Cell warriors, particularly in African communities. We believe that knowledge is power, and through education, outreach, and advocacy, we strive to create a world where Sickle Cell Disease is understood—not feared.

Empowering Lives and Advocating for a Healthier Future!

We strive to empower individuals living with SCD to take control of their health, advocate for their needs, and live full, vibrant lives. We believe in fostering resilience, promoting self-care, and celebrating the strength of the sickle cell community.

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A world where Sickle Cell warriors are supported.

We offer a supportive and understanding community for individuals and families affected by SCD. We provide resources, connect people with support groups, and offer a platform for sharing stories, experiences, and hope.

 

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In Numbers

0%
Of global sickle cell births occur in Sub-Saharan Africa.
The region carries a disproportionately high burden of the disease.
0%
Of children born with SCD in Africa die before age five
Early diagnosis and comprehensive care are often unavailable.
0%
Of individuals with SCD will experience a stroke by age 45
Preventative measures like transfusions and hydroxyurea are critical.
0%
Newborn screening rates for SCD in many parts of Africa.
Late diagnosis delays life-saving interventions in many parts of Africa.

Join Our Community

We recognize that Sickle Cell Disease is a global health challenge. We strive to raise awareness, share resources, and collaborate with organizations worldwide to improve the lives of those affected by Sickle Cell Disease.

Comprehensive Care

We advocate for access to comprehensive, high-quality healthcare for every individual living with Sickle Cell Disease, from diagnosis to ongoing management and innovative treatments.

Community Support

We foster a strong and supportive community where individuals with SCD and their families can connect, share experiences, find encouragement, and know they are not alone.

Education and Awareness

We are dedicated to educating the public about Sickle Cell Disease, dispelling myths, reducing stigma, and promoting understanding and empathy.

Advocacy and Empowerment

We empower individuals with SCD to become self-advocates, to understand their rights, and to navigate the healthcare system with confidence.

Investing in Research

We support and promote research efforts aimed at developing new treatments, improving quality of life, and ultimately finding a cure for Sickle Cell Disease.

Early Diagnosis

We promote the importance of newborn screening and early diagnosis to enable timely intervention and improve long-term health outcomes for individuals with SCD.

Take Action

Big goals are achieved in small steps. Our environmental movement is organized in a way that allows everyone to participate.

Make Life-Saving Medications Affordable/Free

The cost of sickle cell treatments remains a barrier for many families, forcing patients to forgo essential care. No one should have to choose between their health and financial stability. Sign our petition demanding pharmaceutical companies and policymakers reduce the cost of medications like Hydroxyurea and ensure that treatments are accessible to all. Affordable care is a right, not a privilege.

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Fund Groundbreaking Sickle Cell Research
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Protect Sickle Cell Patients in the Workplace
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Diversify Bone Marrow Donor Registries
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Build Sickle Cell Support Networks
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